Page Last Updated: May 15, 2026
Basic Demographics Information๐
Basic Demographics (sed_basic_demographics) is a derived measure with information computed from the following sources:
- Administrative screening records collected by HBCD Study staff, as reported by the birth parent, during the enrolment/screening process (e.g. the age and race/ethnicity of the pregnant study participant)
- Demographics instruments (Social & Environmental Determinants), including Adult (
sed_bm_demo) and Child (sed_ch_demo)
Basic Demographics includes global, visit-agnostic variables that do not change over time and should be consistent across all visits for the adult/caregiver and beginning at Visit 2 for the child (post-birth). Note that if only V01 data for a given adult participant is included in the release (due to ongoing enrollment, participant withdrawal, etc.), then items about their child will be missing, as the child is not born until after the V01 visit.
When using HBCD data, all data users must agree to responsible use as described in the DUC. When conceptualizing studies, analyzing data, and communicating findings from studies that use variables such as race, ethnicity, country of origin, and socioeconomic data, it is critical to consider strategies to avoid stigmatization of any groups and perpetuating harmful biases.
Race and ethnicity are collected as a part of the HBCD protocol to reflect social experiences (i.e., representing social constructs), and should not be conceptualized as biological, natural, intrinsic, or fixed categories of people. In addition, researchers sometimes use race/ethnicity variables as a proxy for unmeasured social experiences or environmental exposures. HBCD measures a wide variety of social experiences and environmental exposures. In analyzing HBCD data, race/ethnicity should not be used as a proxy for measured variables.
V02+ = Child-specific, available Visit 2 onward (post-birth)
Age Variables๐
| Construct | Variable Name | Description |
|---|---|---|
| Maternal Age at V01 | mother_age_v01 |
|
| Maternal Age at Delivery | mother_age_delivery |
|
| Gestational Age at Delivery V02+ | gestational_age_delivery |
|
Sex & Other Variables๐
| Construct | Variable Name | Description / Details |
|---|---|---|
| Child sex V02+ | sex |
Derived from administrative records. |
| Mother education | rc_mother_education |
Derived from sed_bm_demo_edu_001 (Demographics) at V01 |
| Total household income | rc_mother_income |
Derived from sed_bm_demo_income_002 (Demographics) at V01 |
| Recruitment site | recruitment_site |
De-identified site ID derived from administrative records. |
Race & Ethnicity Variables๐
Race and ethnicity variables are either computed from administrative records collected during screening using the American Community Survey (ACS), or a single All of Us (AOU) race and ethnicity item collected as part of the Demographics instrument.
ACS-Derived Variables๐
Race and ethnicity variables computed from administrative records collected during screening using the ACS.
| Construct | Variable Name | Description |
|---|---|---|
| Child ethnicity V02+ | child_ethnicity |
Standard ACS ethnicity item |
| Child race V02+ | child_race |
Standard ACS race item |
| Child race & ethnicityโ multiracial aggregation by ethnicity V02+ | child_ethnoracial_ |
Derived from ACS race/ethnicity screening responses, with multiracial individuals subcategorized by ethnicity - see ACS Combined Race & Ethnicity Logic. |
| Mother ethnicity | screen_mother_ethnicity |
Standard ACS ethnicity item. |
| Mother race | screen_mother_race |
Sandard ACS race item. |
| Mother race & ethnicity โ multiracial aggregation by ethnicity |
screen_mother_ethnoracial_ |
Derived from ACS race/ethnicity screening responses, with multiracial individuals subcategorized by ethnicity - see ACS Combined Race & Ethnicity Logic. |
| Mother race & ethnicity โ multiracial aggregation by race |
screen_mother_ethnoracial_ |
Derived from ACS race/ethnicity screening responses, with multiracial individuals subcategorized by race - see ACS Combined Race & Ethnicity Logic. |
| Mother race indicator variables (0โ5) |
screen_mother_race_ |
Indicator variables from ACS race item: 0 = White 1 = Black or African American 2 = American Indian or Alaska Native 3 = Asian 4 = Native Hawaiian or Other Pacific Islander 5 = Other race |
ACS combined variables are constructed from ACS race and ethnicity screening items following current federal standards:
- Participants who identify as Hispanic or Latino under ethnicity are categorized as Hispanic regardless of race.
- Individuals selecting more than one race are categorized as Multiracial and subcategorized by ethnicity and race (
*_ethnoracial_acs_by_multi_<ethnicity/race>):- By ethnicity: based on Hispanic identity as Multiracial (Hispanic) or Multiracial (non-Hispanic)
- By race: based on Black/African American identity as Multiracial (Black) or Multiracial (non-Black)
Value Labels for Child/Mother ACS Race, Ethnicity, & Combined Race & Ethnicity* Variables:
| * Note: combined variables for the Child currently only include multiracial aggregation by ethnicity. | |||
| Value | Ethnicity | Race | Race & ethnicityโ multiracial aggregation by ethnicity/race |
|---|---|---|---|
| 0 | Hispanic | White | Hispanic |
| 1 | Non-Hispanic | Black or African American | White (non-Hispanic) |
| 2 | Unknown | American Indian or Alaskan Native | Asian/Pacific Islander (non-Hispanic) |
| 3 | Asian | Black (non-Hispanic) | |
| 4 | Native Hawaiian or other Pacific Islander | By ethnicity: Multiracial (Hispanic); By race: Multiracial (Black) |
|
| 5 | Two or More Races | By ethnicity: Multiracial (non-Hispanic); By race: Multiracial (non-Black) |
|
| 6 | Other race | Other (non-Hispanic) | |
| 7 | Unknown | Unknown | |
AOU-Derived Variables๐
Computed from a single All of Us (AOU) race and ethnicity item collected as part of the Demographics instrument.
| Construct | Variable Name | Description / Details |
|---|---|---|
| Mother race & ethnicity | rc_mother_ethnoracial_ |
Derived from the single All of Us (AOU) race and ethnicity item, scored following OMB standards: Anyone identifying as Hispanic/Latino (alone or with another group) is categorized as Hispanic/Latino; all others are non-Hispanic. |
| Mother race indicator variables (0โ7) |
rc_mother_race___{0โ7} |
Indicator variables for AOU combined race/ethnicity item: 0 = American Indian or Alaska Native 1 = Asian 2 = Black, African American, or African 3 = Hispanic, Latino, or Spanish 4 = Middle Eastern or North African 5 = Native Hawaiian or Other Pacific Islander 6 = White 7 = None of these fully describe me |