PROMIS Perceived Stress/Social Supportđź”—
| Name | Patient-Reported Outcome Measurement Information System Perceived Stress/Social Support (PROMIS) |
| Table Name | sed_bm_strsup |
| Construct | Perceived Stress/Social Support |
| Study Visits | V01, V02, V03 |
| Type | Remote Questionnaire (Parent on Child; 4 min) |
| Quality Control | Monitor data dashboard for variable missingness, possible coding errors, scoring verification, and data consistency. |
Instrument Detailsđź”—
The Perceived Stress and Social Support (PROMIS) tools assess caregiver perceived stress and emotional support within their social networks longitudinally. Questionnaires include:
- PROMIS Emotional Support 4a (first 4 questions): Evaluates the quality of emotional support available to the participant
- Perceived Stress Scale-4 (PSS-4) (last 4 questions): Shortened version of the PSS-14 that measures general perceived stress over the past month, used widely used across different populations (including pregnant individuals and young families)
Response options for the PROMIS were modified to include the addition of “Don’t know” and “Decline to answer.”
PROMIS Emotional Support 4a
Emotional support is reported on a 5-point Likert scale. Total raw scores (total_raw_score) are calculated as the sum of all item responses and are only computed when all items are answered. Raw scores are converted to scale/T-scores (scale_score) with standard errors (standard_error) using the official scoring tables (see table "PROMIS Emotional Support 4a"). Higher scores indicate greater emotional support. To include participants with missing item responses, researchers may instead use the HealthMeasures Scoring Service to generate T-scores.
Perceived Stress Scale–4 (PSS-4)
Perceived stress is reported on a 5-point Likert scale. Total scores (total_score) are calculated as the sum of all item responses and are only computed when all items are answered, i.e. have valid responses ranging from 0 to 4 (this excludes non-responses such as "Don't know"). Items 2 and 3 are reverse-coded prior to scoring (i.e., 0→4 becomes 4→0). Higher summary scores indicate greater perceived stress.
Cohen, S., Kamarck, T., & Mermelstein, R. (1983). A global measure of perceived stress. Journal of Health and Social Behavior, 24(4), 385–396. https://doi.org/10.2307/2136404
Hahn, E. A., Cella, D., Bode, R. K., & Hanrahan, R. T. (2010). Measuring social well-being in people with chronic illness. Social Indicators Research, 96(3), 381–401. https://doi.org/10.1007/s11205-009-9484-z