Page Last Updated: October 10, 2025

Version: R1.0πŸ”—

Release date: 2025-06-26

CountsπŸ”—

  • Total number of participants queried from DB: 1,426
  • Total number of visits:
    • All: 2,207
    • V01: 1,426
    • V02: 660
    • V03: 121
  • By Sex (V02/V03 visit done):
  • Female: 328
  • Male: 338

Exclusion Criteria & FiltersπŸ”—

General Rules Applied to All DataπŸ”—

  • For all participants with only one active V01 visit, sex is changed from "Male/Female" to β€œOther”
  • All empty strings (β€œβ€) or missing values are replaced with the default ReproSchema-compliant string β€œn/a”
  • Some fields can have out-of-range values considered β€œextreme” that are changed to β€œn/a" - see Filtered Field Values.

Static Element ExclusionsπŸ”—

Static elements are precisely identified hard-coded elements. Exclusions applied to static elements in the current release are as follows:

Participant ExclusionsπŸ”—

The current data release excludes participants with a 'Postnatal Recruitment' visit as well as Multiple Birth Participants (to be included in Release 2.0).

Instrument & Field ExclusionsπŸ”—

Expand the following section to see a list of instruments and instrument fields excluded from the current release:

Excluded Instruments & Instrument Fields β–Έ
Excluded Instruments
Instrument Table Name
Biosensor Receipt Formsens_ch_rcpt
EEG Acquisition Checklist - Formeeg_ch_chkl
EEG Acquisition Checklist - Reattempt 1eeg_ch_chkl_1
EEG Acquisition Checklist - Reattempt 2eeg_ch_chkl_2
GABI Setupnt_pa_gabi_setup
GABI Receiptnt_pa_gabi_rcpt
ERICA 3–7 Monthsmh_cg_erica_3_7m
ERICA 7–9 Monthsmh_cg_erica_7_9m
ERICA FCM Admin 3–7 Monthsmh_cg_erica_fcm_adm_3_7m
ERICA FCM Admin 7–9 Monthsmh_cg_erica_fcm_adm_7_9m
MRI Data Summary Formmri_ra_chkl_data
MRI Scan Session Summary Formmri_ra_chkl_scan
MRI Pre/Post Scan Prepmri_ra_prep
NIH Baby ToolBoxncl_ch_nbtb
Participant Feedback Formadm_cg_fb
RA Feedbackadm_ra_fb
Participant Alertsadmin_alert
TLFB (Timeline Follow Back) Summary Parserpex_ch_tlfb
Visit Level Dataadm_fd_visitdata
Visit Startvisit_start
Urgent Eventsadm_fd_urgent
Transitions in Care Questionnairesed_cg_tic
Excluded Instrument Fields
Field Field Name
ExaminerExaminer
Date of BirthDOB
Informantinformant
Validityvalidity
Durationduration
Window Differencewindow_difference
Start timestamptimestamp_start
Stop timestamptimestamp_stop
REDCap timestamptimestamp_redcap_locked
Visit Datavisit_stage removed from the visit_data category
Height/Weight/Head Circumferenceph_ch_anthro – BMI-related fields removed
Breast Feeding Historyph_cg_phx_i_bfh – All fields except 001 excluded
Clinical Alerts
REDCap Complete statuscomplete
Scannable codesBioSamples codes, tracking Nos, etc.
Line fields

Filtered Field ValuesπŸ”—

Some fields can have out-of-range values considered β€œextreme.” Values outside of the valid ranges listed for the instruments below were filtered, i.e. changed to "n/a."

Instrument Table Name Field Valid Range
Growth ph_ch_anthro
Length (len_001_i_03) 30 to 130 cm
Head Circumference (head_001_i_03) 25 to 55 cm
Weight (wei_001_i_03) 0.5 to 30 kg
Healthv2 Inf pex_bm_healthv2_inf
001_i_01 ≀ 16
001_i_02 ≀ 66
002 12 - 51
002_i_01 30 - 130

Dynamic Element ExclusionsπŸ”—

In contrast to static elements (e.g. participants, instruments, and instrument fields), which are fixed and consistently structured, dynamic elements refer to data that are programmatically derived, conditionally included, or vary based on participant behavior or system context. These elements may include calculated fields, system-generated metadata, or selectively captured measures such as biospecimens, geocoded data, and direct REDCap submissions. The following filters were applied to exclude specific dynamic elements from this release, based on participant status, visit timing, data completeness, and domain-specific conditions:

    Participant Filters:
  • No brain rating or brain rating noted β€œatypical” are not selected
  • Only active participants and sessions are selected
    Visit Filters:
  • Only visits whose 'LaunchPad Complete' Status was set to 'Complete' before July 1st, 2024 are included
    Domain Filters:
  • BioSpecimens
  • Geocoding data
  • Transition in Care